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Community Fundraisers
Community Fundraisers are conducted by friends and families of a person(s) with a disability for which NDAD acts as custodian of the funds raised. These funds can be used to help the person with urgent needs and expenses. The funds may also be used beyond the scope of NDAD’s guidelines, such as helping with doctor, clinic or hospital bills and paying pre-existing bills.

There are many people with disabilities, in communities across the state, in need of financial assistance. 100% of your donation will be used for the person’s needs. Even the smallest donations still have an impact. Any funds donated to NDAD will qualify for a charitable donation and be deductible for donors who itemize.
Below are the current community fundraisers going on throughout North Dakota. Click on a name below to donate and help others to help themselves.

NANCY KOHO
Give OnlineOn Thursday, June 16, Grand Forks Country Club will sponsor and play host to a fundraising golf tournament -- Kick’N Out Cancer -- for cancer patient Nancy Koho, the club’s bookkeeper.

The tournament will be followed that day with more fundraising for Nancy, also at the country club, featuring a rib dinner, ice cream social and other family-fun activities.

Nancy was first diagnosed with a rare and aggressive metaplastic breast cancer in July 2015.

Nancy, a native of Warren, Minn., and resident of East Grand Forks, Minn., has undergone two surgeries to remove the tumor and completed several rounds of chemotherapy treatments, traveling to and from Chicago for these strong, strategic treatments. She is undergoing radiation treatment at the time of this writing.

Nancy daily demonstrates the strongest of will, determination and faith that is humanly possible and refuses to let her health challenge affect her daily routines, according to those closest to her.

Given the financial strain of her medical treatment, Grand Forks Country Club members want to help Nancy and her family maintain her daily routine as much as possible and relieve her of some of her burden.

Nancy is a self-employed accountant whose clients also include Hope Church. She is married to K.C. Koho. They have two children: Kaleb, an East Grand Forks Senior High sophomore, and Abbie, a Riverside Christian School fifth grader.

All are welcome to participate in the Kick’N Out Cancer tournament, which includes 18 holes of golf, a card, an 11 a.m. lunch, 12 noon shotgun start and the 6 p.m. rib dinner. Early-bird registration is $110, with payment required before June 1. After that, registration costs $125.

Golf tournament tickets can be purchased at the Country Club. Early-bird registration is $110 with payment before June 1, and $125 afterward. Call (701) 772-4831 to register for the tournament or to reserve dinner tickets.

Additional tickets for the rib dinner are $20 each for adults, $5 for kids.

The freewill-offering family ice cream social will begin at 7 p.m. The evening activities also include games, photo booth, raffles and life music.

Charitable nonprofit NDAD also is sponsoring fundraising activities for Nancy Koho and has set up a fund to help her. You may donate online to help Nancy on this Community Fundraisers page, clicking the "Give Online" button that accompanies this article and poster. Or, you may mail your donation to NDAD, c/o Nancy Koho Fundraiser, 2660 S. Columbia Road, Grand Forks, ND 58201. Make your check payable to NDAD and write “Nancy Koho” on the memo line. For more information, call (800) 532-NDAD.
Mail Donations For NANCY KOHO To:
NDAD
c/o Nancy Koho Fundraiser
2660 S. Columbia Road
Grand Forks ND 58201

Please make checks payable to NDAD and write "Nancy Koho" on your check''s memo line.

All proceeds will be used to help Nancy and her family with medical and general expenses.

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MADELYN PERKEREWICZ
Give Online(NOTE: The benefit for Madelyn Perkerewicz and her parents has been held, but the fund set up to help the family remains open to donations.)

Madelyn Perkerewicz's life got off to a difficult start, and no one knows it better than her parents, Jessica and Tyler Perkerewicz of Grand Forks.
Here's how Jessica recalls it, beginning with her pregnancy:

"At our routine 20-week appointment, we were able to find out the gender of the baby. At this time, our MD expressed concern that Madelyn may have spina bifida due to her having an abnormal head shape on the ultrasound.
We went to Fargo Sanford to see a maternal fetal specialist to further look into this. We were told that she did not have spina bifida but was diagnosed with intrauterine growth restriction.

"The pregnancy was relatively normal after that. Our MD ordered weekly non-stress tests and weekly ultrasounds to monitor the baby and the blood flow in the umbilical cord.

"At our follow up for the 35-week appointment, we were told the blood flow was decreasing, and there were concerns that we could lose the baby if the flow continued to decrease. I was admitted to the hospital to monitor the baby overnight, and another ultrasound would follow in the morning to check progress. It was determined that the blood flow was the same but I had lost amniotic fluid over night, resulting in the need to deliver."

Madelyn was born at 35 weeks and 5 days into term at Grand Forks Altru Hospital. She weighed 4 lbs., 9.4oz and was 17.5 inches long.

"She required chest compression's upon delivery as she was not breathing," Jessica recalled. "She was admitted to Altru''s NICU and placed on a CPAP machine. Through their testing, concerns were raised that the artery in her heart was narrowing and could need surgery. They also continued to have concerns with her underdeveloped lungs."

Baby Perkerewicz was taken by life flight from Grand Forks to Mayo Clinic in Rochester, Minn., the day after her birth.

"At Mayo, Madelyn was on many breathing machines to help her lungs develop, including a high-frequency oscillator ventilator, a regular respirator and a continuous positive airway pressure (CPAP) machine," Jessica continued.

"While at Mayo they determined that her heart was normal and she would not need surgery. Throughout her stay, they had concerns with low blood pressure, and she was on hydrocortizone.

"After two weeks at Mayo, Madelyn had overcome her breathing/lung trouble and was able to be transferred back to Altru (where she would continue to be monitored on the hyrdocortizone and work on feeding as she was tube fed throughout her stay at Mayo."

Madelyn was discharged from the neonatal intenstive care unit at Altru a week after returning to Grand Forks, but she continued hydrocortizone treatment.

"She has since finished the medication and is eating normally and continues to do well," her mom said.

Meanwhile, an NDAD-sponsored benefit has been announced to help the Perkerewicz family with medical and general expenses.

The Racing for Madelyn benefit is set for 6 to 9 p.m. Saturday, April 16, at the East Grand Forks (Minn.) VFW, 312 Demers. The event will include a silent auction, bake sale and freewill-offering taco-in-a-bag meal. All proceeds will go to the Perkerewicz family to help with expenses.

You also can donate here by using the "Give Online" digital button that accompanies this article. Or you may mail a donation at the address listed below.
Mail Donations For MADELYN PERKEREWICZ To:
NDAD
c/o Madelyn Perkerewicz Fundraiser
2660 S. Columbia Road
Grand Forks, ND 58201

Please make your check payable to NDAD and be sure to write "Madelyn Perkerewicz" on your check''s memo line.

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DAVID KNAPP
Give OnlineDavid Knapp, 66, is a longtime Grand Forks community resident and St. Mary’s parish and choir member.

David has a failing kidney, which was diagnosed in 2013.

Although David has been employed at Opp Construction for about 30 years, he more recently has been unable to work at his full capacity because of his illness.

David and his wife of 43 years, Cabrini Marie, are parents to six adult children and grandparents to six more. Strong believers in holistic medicine and vitamin supplements, David and Cabrini sell those supplements on a limited basis.

David was raised in Grand Forks. A graduate of Central High School, he has bachelor’s and master’s degrees in physics from the University of North Dakota.

Besides participation in St. Mary’s choir, David enjoys gardening and camping when his health allows.

A benefit was held on May 26, 2015, at St. Mary’s Church in Grand Forks to help David with medical and general expenses. NDAD sponsored that benefit and is sponsoring this fund through its free Community Fundraisers Program.

Monetary donations can be made by mail or online to help David Knapp. Click the “Give Online” button that accompanies this article and photo and use a credit card or PayPal to make your donation.

Or, please use the mailing address below to mail a donation. Thank you.
Mail Donations For DAVID KNAPP To:
NDAD
c/o David Knapp Fundraiser
2660 S. Columbia Road
Grand Forks, ND 58201

Please make your check payable to NDAD and be sure to write "David Knapp" on the check''s memo line. Thank you.

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EVERLY PETERSON
Give OnlineNOTE: The benefit for Everly Anne Peterson has been held, but the fund remains open for donations.

After a seemingly normal pregnancy complete with surprise announcements, pictures of a growing belly, nursery decorations and cravings, an ultrasound at 28 weeks revealed that Erin and Brody Peterson’s baby had an enlarged bladder.

For the next 11 weeks, Erin and Brody attended twice-weekly ultrasounds and countless doctors appointment in Grand Forks, where they live, and in Fargo to monitor the baby’s kidney and bladder function.

Erin and Brody traveled to Fargo, where Erin would be induced at 39 weeks in a place where specialists would be available should the baby need them.

On Sept. 22, Everly Anne Peterson was born -- a sweet baby girl weighing 7 pounds and 10 ounces, with bright eyes and a full head of soft brown hair.

Unfortunately, not long after the first few visitors had left, Everly was unable to keep milk down, began spitting up bile and was admitted to the NICU. The initial testing showed an intestinal blockage that would require an operation.

So at only 2 days old, Everly underwent her first surgery. In the days following Everly’s surgery her condition did not improve. Further bladder and intestinal issues were identified and it became clear that the problem was much more serious than even her family''s worst fears.

In her first month of life in Fargo, Everly tolerated numerous tests and procedures around the clock. The skilled and compassionate medical staff in Fargo worked tirelessly to care for her but after all was said and done, she was still lovingly referred to as their "mystery baby."

In a meeting on Oct. 20, a room full of more than 15 medical personal and two very concerned parents decided that Everly needed to be moved to a larger hospital that specialized in gastrointestinal care and the very next day Everly took her first plane ride to Milwaukee Children’s Hospital in Wisconsin.

Everly’s gastrointestinal system and bladder are still not functioning and nobody knows why. This means that she is not able to eat or digest on her own. Erin and Brody are learning to catheterize her to empty her bladder manually and she receives nutrition through a pic line.

Unfortunately these solutions can only be temporary.

More recently, Everly had surgery to insert a tube that goes from her mouth through her stomach and into her intestines to try and pinpoint the problem. The medical team also took a piece of the intestinal wall to analyze.

The family still doesn't know what the future holds and is praying for a miracle. Meanwhile, their financial challenges steadily increase, the amount their medical insurance covers is very uncertain, and a number of their expenses caused by the ordeal fall outside of insurance.

In January, Erin Peterson's paid maternity leave expires, which may require Erin and Brody to forfeit her income all together.

Several fundraisers have been established to help Everly and her family with medical and general expenses. One of them is set for Thursday, Dec. 10, from 5:30 to 7:30 p.m. at East Grand Forks (Minn.) Eagles Club. The freewill donation event includes a spaghetti dinner, raffle and bake sale.

Charitable nonprofit NDAD is sponsoring the event through its free-of-charge Community Fundraisers Program. All proceeds through the NDAD-sponsored fundraiser will go to help Everly and her parents with their medical and general expenses.

Click on the "Give Online" button that accompanies this article and photo to donate online to help Everly and her family using your credit card or PayPal. Or, mail your donation to help Everly and her family to NDAD, c/o Everly Peterson Fundraiser, 2660 S. Columbia Road, Grand Forks, ND 58201.

You can continue to follow Everly's cause at:
* NDAD''s Facebook page
* CaringBridge: http://www.caringbridge.org/visit/everlypeterson and on the following social media sites.
* Twitter:@foreverlyp
* Instagram: foreverlypeterson #foreverly #foreverlystrong #teameverly
* Facebook:foreverly

Read a Grand Forks Herald article about Everly HERE.

See a video about Everly HERE

PHOTO: Traci Adamson Photography.
Mail Donations For EVERLY PETERSON To:
NDAD
c/o Everly Peterson Fundraiser
2660 S. Columbia Road
Grand Forks, ND 58201

Please make checks payable to NDAD and be sure to write "Everly Peterson" on your check's memo line. All proceeds -- 100 percent -- will go to help Everly and her family with medical and general expenses.

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Learn more about NDAD's free Community Fundraisers Program and how it may help you help another with serious health challenges or a disability. Call (800) 532-NDAD.
KRISTIN EINARSON ROSENTHAL
Give OnlineNOTE: The benefit for Kristin Rosenthal has been held, but donations continue to be accepted at the NDAD fund set up for Kristin and her family.

Life for Kristin Rosenthal took a dramatic turn toward the difficult in late November 2015.

Nov. 22 was supposed to one of the best days in the Grand Forks woman’s 40 years of life. It was the day of her daughter Emerson’s 8th birthday party.

Instead, Kristin injured both knees when she landed “totally wrong” while jumping on a trampoline at the party site.

Now, as Kristin struggles to recover from major surgeries on both knees, a benefit is set for Sat., Jan. 23, at the East Grand Forks Eagles Club to help her deal with medical and general expenses. The benefit is set for 3 to 6 p.m. that day, and plans include a freewill-offering meal of pulled pork, cole slaw and beans, and a bake sale and silent auction.

Proceeds from the benefit, which is sponsored by NDAD, will go to help Kristin and her family with her medical and general expenses. Thrivent Financial also is a sponsor.

Kristin is a visitation supervisor for Grand Forks County Social Services, but has been unable to work since the accident. Her husband, Dave, works for Rydell’s.

In her first surgery after the accident, Kristin put an external fixator on her right leg, where her knee dislocated, to keep it straight. Her left knee dislocated, too, but had gone back into place. But Kristin knew something was wrong with that knee, too, and told her medical team as much. A subsequent MRI revealed that both knees needed total rebuilding, she recalled. The hospital surgeon told her that she would be OK but only after at least a year.

Kristin soon was accepted at the University of Minnesota Medical Center in Minneapolis and transported by ambulance Nov. 30, while her husband, Dave Rosenthal, remained home to care for their daughter.

Kristin’s parents, Einar and Elaine Einarson, came to the Twin Cities to be with her.

Kristin’s U of M surgeon “continually stressed how big these two surgeries were going to be. He would harvest part of Kristin’s hamstring for her anterior cruciate ligaments on both knees and then use cadaver parts to rebuild them, she learned.

Her left knee was rebuilt Dec. 1, and her right knee Dec. 9. She was left weak and in pain with an uncertain outlook, she recalled.

“The surgeon stated that he hasn’t seen where someone had damaged both of their knees at the same time,” Kristin recalled.

While she learned that it takes, on average, six to eight weeks for toe-touch weight bearing on a leg with a rebuilt knee, she had two knees to be concerned about. Both of her knees were locked in extension by braces. She was challenged to adapt to perform simple daily tasks.

On Dec. 17, after Kristin learned how to perform standing transfers and range of motion maneuvers, within certain guidelines, in occupational and physical therapies, she was released from the U of M hospital.

Kristin had worked with NDAD and used its short-term adaptive equipment loan program in an effort to ensure a temporary residence at her parents’ Grand Forks home would work for her. “We live in an older home where the doorways were too small and I would be wheelchair-dependent for an uncertain amount of time,” she explained.

But she didn’t go to live with her parents immediately. Kristin’s insurance finally approved her for seven days at Valley Memorial’s transitional care unit (TCU), but her insurer overturned an earlier decision to pay for transportation back from the Twin Cities to Grand Forks, “a huge expense out of pocket,” she said.

“Being at the TCU allowed me to get stronger and continue with PT and OT,” Kristin said. “We focused on things that I would need to overcome when I got to my parents’ home.”

Kristin, who friends and family members say is known for taking care of others who have been in need, says she’s faced continued frustration having to advocate for herself with her insurance provider, mostly recently “as they continue to deny medication that is crucial to my recovery and health.”

Fortunately, she said, her friends and relatives have been great support, she said.

You can help Kristin by clicking the “Give Online” button that accompanies this story and donate using PayPal or your credit card. Or, you can mail or deliver your donation to the following address:

NDAD
c/o Kristin Rosenthal Fundraiser
2660 S. Columbia Road
Grand Forks, ND 58201

Please make your check payable to NDAD and be sure to write “Kristin Rosenthal” on your check’s memo line. Again, your full donation will be used to help Kristin and her family.

The fundraiser is sponsored by NDAD through its free Community Fundraisers Program. Learn more about it by calling (800) 532-NDAD.





Mail Donations For KRISTIN EINARSON ROSENTHAL To:
NDAD
c/o Kristin Rosenthal Fundraiser
2660 S. Columbia Road
Grand Forks ND 58201

Please make your check payable to NDAD and be sure to write “Kristin Rosenthal” on your check’s memo line. Again, your full donation will be used to help Kristin and her family.

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MARK KOLLER
Give Online(The benefit for Mark Koller has been held, but the fund to help Mark remains open for donations.)

Mark Koller of Grand Forks is no stranger to health challenges, and now he faces his greatest one yet – one that has prompted friends and family to plan a Feb. 13 benefit on his behalf.

About 20 years ago, Koller, 52, was placed on blood thinners to help accommodate an aortic valve replacement in his heart. Since then, he’s had his blood levels checked on a monthly basis.

One such check in November 2015 revealed that his blood levels were dangerously high.

Mark soon was admitted to a hospital, where tests revealed he had a mass on his pancreas.

A trip to the Mayo Clinic medical complex in Rochester, Minn., followed, as did numerous medical tests , hospitalizations and procedures – complicated by Mark’s heart valve replacement and blood levels.

He developed pancreatitis in Rochester and was diagnosed with adenocarcinoma, a cancer formed from glandular structures in epithelial tissue, which lines the surfaces and cavities of the body’s organs. A malignancy had formed on his pancreas.

Because of his diagnosis, Mark is unable to work at his job as a Transystems truck driver and trainer. He’s required to under chemotherapy and will return to Mayo Clinic for surgery and medical care on an ongoing basis.

Mark is married to Susan Koller, and they have four adult children and four grandchildren between them. Mark, a former longtime mechanic for Rydell Auto, spent the first part of his life in the Glen Ullin, N.D., area before moving to Grand Forks about 30 years ago.

Meanwhile, work continues to prepare for the Sat., Feb. 13, benefit at the East Grand Forks (Minn.) Eagles Club. Event plans call for $5 sloppy joe meal, plus a silent auction, bake sale, 50-50 raffle and music provided by deejay Robert Benda. Organizers also will sell $2 “Mark’s Mission” bracelets – each the color purple to represent cancer of the pancreas. Freewill offerings also are welcomed.

Donations to help Mark are being accepted online at http://www.ndad.org/fundraisers.asp. Click on the “Give Online” button that accompanies this article and benefit poster, and use your PayPal account or credit card to make the donation.

Or, you may mail your donation to NDAD, c/o Mark Koller Fundraiser, 2660 S. Columbia Road, Grand Forks, ND 58201. Please make your check payable to NDAD and be sure to write “Mark Koller” on your check’s memo line.

All proceeds will be used toward helping Mark Koller with medical and general expenses.

The event is sponsored by NDAD, through its free Community Fundraisers Program, and also by Thrivent Financial. Learn more about NDAD’s role and the program by calling (800) 532-NDAD (-6323).

Mail Donations For MARK KOLLER To:
NDAD
c/o Mark Koller Fundraiser
2660 S. Columbia Road
Grand Forks, ND 58201

Please make checks payable to NDAD and be sure to write "Mark Koller" on your check's memo line.

All proceeds will go toward helping Mark with medical and general expenses.

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RYLIE HEISLER
Give Online(NOTE: The benefit for Rylie Heisler was held Jan. 30, but the NDAD fund collecting donations for the Heisler family remains open.)

Rylie Heisler is a senior at East Grand Forks (Minn.) Senior High School.

She has been diagnosed with osteosarcoma bone cancer and is undergoing treatment, which includes chemotherapy and surgery.

Rylie is the daughter of Dee and Doug Heisler and the sister of Hadyn Heisler.

Rylie is the type of person who works hard, is always willing to help others and wears a smile daily.

A benefit will be held Sat., Jan. 30, from 5 to 8 p.m. at the East Grand Forks American Legion, 1009 Central Ave. N.W. The benefit will feature a freewill-offering taco bar, plus live and silent auctions, a bake sale and live music by Dan the Dance Man.

All proceeds will be used to help the Heislers with medical and general expenses.

People also can donate at East Grand Forks Senior High.

You also can make a donation at NDAD.org on this very page by clicking the "Give Online" button and using your PayPal account or credit card to make a donation.

Or, you may mail a donation to NDAD, c/o. Rylie Heisler Fundraiser, 2660 S. Columbia Road, Grand Forks, ND 58201. Please make checks payable to NDAD and be sure to write "Rylie Heisler" on your check''s memo line.

The fundraiser for Rylie Heisler is sponsored by NDAD through its free Community Fundraisers Program. Learn more about it by calling NDAD at (800) 532-NDAD (-6323).
Mail Donations For RYLIE HEISLER To:
NDAD
c/o Rylie Heisler Fundraiser
2660 S. Columbia Road
Grand Forks, ND 58201

Please write your check to NDAD and be sure to write "Rylie Heisler" on your check''s memo line. Thank you.

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© North Dakota Association for the Disabled, Inc. 2016