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Community Fundraisers
Community Fundraisers are conducted by friends and families of a person(s) with a disability for which NDAD acts as custodian of the funds raised. These funds can be used to help the person with urgent needs and expenses. The funds may also be used beyond the scope of NDAD’s guidelines, such as helping with doctor, clinic or hospital bills and paying pre-existing bills.

There are many people with disabilities, in communities across the state, in need of financial assistance. 100% of your donation will be used for the person’s needs. Even the smallest donations still have an impact. Any funds donated to NDAD will qualify for a charitable donation and be deductible for donors who itemize.
Below are the current community fundraisers going on throughout North Dakota. Click on a name below to donate and help others to help themselves.

1) CHRIS LARSON
Give OnlineNOTE: The Oct. 23 fundraiser at EERC and the November fundraiser at Calvary Lutheran Church have been held. The fundraiser continues, including plans for an early 2015 benefit.

Chris Larson’s 35th birthday is in December, but he’s hardly taking it for granted.

A married Grand Forks man with two children, ages 10 and 5, Chris has spent several years battling health ailments, plus some steep medical bills that have accumulated with those health issues.

He needs back surgery, and he also has two hernias that require repair. He’s also dealt with cancer, specifically nonseminoma embryonal testicular carcinoma. First diagnosed in 2012, Chris needed surgery at the Mayo Clinic complex in Rochester, Minn., to remove that cancer, plus 37 lymph nodes from his abdomen. He goes to Altru in Grand Forks every six months for CT scans.

Chris works at UND’s Energy and Environmental Research Center as a technology development operator. He sets up, maintains and repairs bench and pilot scale equipment in support of EERC projects.

Friends, family and co-workers are trying to help the Larsons, beginning with a taco-in-a-bag benefit on Chris’ behalf in EERC’s Discovery Hall that was held Oct. 23.

Additional benefits to help Chris; his wife, Tiffany; daughter, Emma; and son, Keaton, include another taco-in-a-bag lunch, this one at Grand Forks Calvary Lutheran Church from 10:30 a.m. to 12:30 p.m. on Sunday, Nov. 16; and a large benefit featuring a free-will offering supper, bake sale and silent auction, planned for Saturday, Feb. 21, 2015, at the East Grand Forks (Minn.) Eagles Club. The November and February events are open to the public.

All proceeds will go to help the Larsons with medical and general expenses.

There are other ways you can help Chris Larson right away. Go to http://www.ndad.org/fundraisers.asp, where you can click the “Give Online” button next to this article and a photo of him and make a donation using your credit card or PayPal account.

Or, you can mail a donation to NDAD, c/o Chris Larson Fundraisers, 2660 S. Columbia Road, Grand Forks, ND 58201. Please make checks payable to NDAD and be sure to write “Chris Larson” on your check’s memo line.
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Mail Donations For 1) CHRIS LARSON To:
NDAD
c/o Chris Larson Fundraisers
2660 S. Columbia Road
Grand Forks, ND 58201

Please make checks payable to NDAD and be sure to write "Chris Larson" on your check''s memo line. Thank you.

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Go to NDAD''s Facebook page and "like" NDAD to stay up-to-date with upcoming information about Chris Larson fundraising efforts and about other fundraisers and endeavors by charitable nonprofit NDAD.

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HANNAH TWEDT
Give OnlineNOTE: The benefit held for Hannah Twedt is over, but the fund account for Hannah remains open.

"I am a miracle," Hannah Twedt has said.

She is a wonder, for sure.

Hannah, who turns 17 on Nov. 2, is the daughter of Sue and Bob Twedt of Grand Forks. She's a Red River High student who regularly gets "A" grades. She does volunteer work, helping at Circle of Friends Humane Society and with the daycare at her church. She rides horses and also a recumbent bicycle.

Not bad for a teen who was diagnosed with autism while in kindergarden and who has faced numerous physical challenges since birth. She has scoliosis. Hannah's had multiple surgeries in her life, most notably a life-saving major head and face reconstruction about two years ago. That dealt with the front half of her head.

Now she faces a new round of critical surgery in December, called a posterior calvarium remodel and expansion.

In short, Hannah needs more of her head rebuilt. It's a task that is fraught with very serious and dangerous risks for her, according to her mom, Sue Twedt. But the alternative is more grim, still. If it doesn't work, she will die, Hannah's mom said.

Hannah was born with a rare, progressive condition -- Saethre-Chotzens syndrome -- that was diagnosed when she was 9 years old, but her family or medical team didn't know just how serious her condition had become until a few years ago, when she was 14, and only then because of a chance view of Hannah's scoliosis x-rays at Shriners Children's Hospital in the Twin Cities by a visiting neurosurgeon. Dr. Patrick Graupman saw large pitting holes in the base of Hannah's skull -- leading to the Saethre-Chotzens diagnosis. It was determined that Hannah's growing brain had caused those pits in her skull, plus her increasing headaches and vision problems. She was going blind, experiencing more neurological damage -- and she faced death if something wasn't done soon.

Saethre-Chotzens usually is diagnosed in infancy and treated with cranial, mid-face and eye muscle surgeries in early childhood -- long before it can create the complications and challenges that Hannah now faces.

Hannah was born virtually without cranial sutures and skull bones. When her skull finally developed, Sue Twedt explains, it occured as a single fused shell, rather than eight separate plates. To reconstruct her head, Hannah's medical team needed to use artificial bone material.

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The Nov. 18 benefit includes a freewill offering spaghetti dinner, plus a silent auction and sale of fresh baked goods. All proceeds will go to help the Twedts with medical and general expenses.

NDAD is a sponsor through its free Community Fundraisers Program and also is serving as custodian for the Hannah Twedt fund and providing some other publicity and marketing support.

Thrivent Financial also is a fundraiser participant through a matching grant. The benefit is being organized by Greenberg Realty, where Hannah's dad works.

You can donate online to help Hannah, using the "Give Online" digital button next to this article and your credit card or PayPal. Or, you can mail a donation to the address listed below.
Mail Donations For HANNAH TWEDT To:
NDAD
c/o Hannah Twedt Fundraiser
2660 S. Columbia Road
Grand Forks, ND 58201

Please make checks payable to NDAD and be sure to write "Hannah Twedt" on your check's memo line. Thank you.

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Go to NDAD's Facebook page and "like" NDAD to stay up-to-date with upcoming information about fundraising efforts for Hannah and about NDAD's other fundraisers and endeavors to help people with disabilities and health challenges.

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CARTER, COLE AND CORA OLSON
Give OnlineNOTE: The benefit for "Team Olson" was held Oct. 17, but the NDAD fund to help the Olsons remains open for donations.

NDAD will sponsor an Oct. 17 benefit to help the prematurely born Olson triplets of East Grand Forks, Minn., and their parents, Cassie and Jeremy.

The baby Olsons -- Carter, Cole and Cora -- were due Sept. 2, but instead were delivered May 31 via emergency c-section at 26 weeks, three days at Abbott Northwestern Hospital in Minneapolis, with the largest weighing a mere 2 lbs., 3 ounces.

The triplets, all with health challenges, remain in the hospital. two of the three have needed surgeries. After six weeks in Abbott Northwestern''s neonatal intensive care unit, the triplets were moved to the hospital''s Infant Care Center.

Through its free Community Fundraisers Program, charitable nonprofit NDAD will serve as fund custodian for the "Team Olson" fundraising efforts.

SAVE THIS DATE: The benefit portion of the fundraising will be held from 5:30 to 9 p.m. Fri., Oct. 17, at the East Grand Forks Eagles Club.

Watch NDAD''s Facebook page for more details very soon about the benefit and about the Olsons, including a poster to print and distribute, how you may contribute to a planned silent auction, and ways to donate online or by mail.

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Photo: Andrea Reiss Photography
Mail Donations For CARTER, COLE AND CORA OLSON To:
NDAD
c/o Olson Triplets Fundraiser
2660 S. Columbia Road
Grand Forks, ND 58201

Please make checks payable to NDAD and be sure to write Olson Triplets on your check''s memo line.

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Go to NDAD''s Facebook page and "like" NDAD to stay up-to-date with information about the Olson triplets, the Oct. 17 benefits planned on their family''s behalf and about other fundraisers and endeavors by charitable nonprofit NDAD.

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JULIE FEIL
Give Online(NOTE: This fundraiser was held on Sept. 30, but donations still are being collected. Go to the bottom of the article for more information.)

Julie Feil, 54, of Langdon, N.D., was diagnosed this summer with pancreatic cancer. Now she is in a battle for her life.

A special benefit will be held for Julie on Friday, Oct. 3, at the Langdon Eagles Club, 723 Third St. N., in Langdon.

The event includes a silent auction that runs from noon to 8 p.m. and a free-will-offering pork roast dinner that begins at 5 p.m. Karaoke fun will go on throughout the night.

All proceeds will be used to help Julie defray costs for medical and general living expenses.

The East Grand Forks, Minn., native, born Julie Von Rueden, has worked for 10 1/2 years as the chief financial officer of Cavalier County Memorial Hospital In Langdon.

Julie has been married for 31 years to Kent Feil. They are the parents of three adult children: Alex, 28, Courtney, 25, and Chelsea, 23.

One of six Von Rueden children, Julie attended and graduated from East Grand Forks Senior High in 1978. She earned a bachelor's degree in accounting in 1983.

Charitable nonprofit NDAD is serving as fund custodian for the Julie Feil fundraising effort through NDAD's free Community Fundraisers Program.

You also can help Julie by donating online, using the "Give Online" button that accompanies this article and copy of the benefit flier and your credit card or PayPal.

Or, you may may mail a donation to help Julie Feil. Send your check to NDAD, c/o Julie Feil Fundraiser, 2660 S. Columbia Road, Grand Forks, ND 58201. Make checks payable to NDAD and please be sure to write "Julie Feil" on your check''s memo line.

Learn more about NDAD's Community Fundraisers Program and how it may be able to assist your effort to raise money for a loved one or friend with a disability or serious health challenge. Call (800) 532-NDAD for more information.
Mail Donations For JULIE FEIL To:
NDAD
c/o Julie Feil Fundraiser
2660 S. Columbia Road
Grand Forks, ND 58201

Please make checks payable to NDAD and be sure to write "Julie Feil" on your check''''s memo line.

Go to NDAD's Facebook page and "like" NDAD to stay up-to-date with information about the fundraising efforts for Julie Feil, the Oct. 3 benefit planned on her behalf and about other fundraisers and endeavors by charitable nonprofit NDAD.

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KYLE JOHNSON
Give OnlineNOTE: The benefit for Kyle Johnson was held in late January 2014, but the NDAD fund to help Kyle remains open for donations. A January 2014 NDAD article on Kyle Johnson can be found at NDAD Insight, an Areavoices blog.

FROM AUG. 22, 2014

NDAD salutes Kyle Johnson of Grand Forks and the Johnson family, one year after a near-fatal train crossing accident on the west end of Grand Forks Aug. 21 that injured Kyle and co-worker Jonathan Bartel as they were on the job for Grand Forks Mosquito Control. Jonathan, who was seriously injured, has made a recovery from his injuries. Kyle, 28 when the accident occurred, experienced a traumatic brain injury and nearly died. He has traveled from Grand Forks to the Twin Cities and back, and he's made substantial strides while "continuing the journey of wellness and rehabilitation," according to his mom, Deb Johnson.

She made this CaringBridge.org post Aug. 21, along with a before-after photo, entitled "One year post Trauma!!!":

"Yes . . . today we marked the 1 year anniversary of the accident that injured Jonathon Bartel and challenged Kyle with life altering injuries. I remember so vividly the call that came to my school and the race to get to the emergency room at Altru. The weeks we spent in SCCU and the wonderful people that helped us heal during the initial stages of his injury. We remember coming home to luminaries aglow across our entire neighborhood and the caring hugs and words of support as the community came together to support Kyle and Jonathon. The prayers that were sent up from all parts of the country and sometimes across the world. We want to spend this evening expressing again our immense gratitude to all who stood with us as Kyle has learned to navigate a new world. Thank you Altru, Bethesda, Courage Center, GF City Health Dept. and NDAD. Thank you Altru Rehab, family, friends, co-workers and neighbors. To Comfort Keepers, Music Therapy in Motion and UND Communications Sciences and Disorders, we thank you for continuing the journey of wellness and rehabilitation as we move into a new phase. A special thank you to the Grand Forks City Mosquito Control who have steadfastly been at Kyle's side and continue to be his source of friendship, encouragement and partner in his recovery. We love you all!! It has been a rough year, but a rewarding year and I know there is much more to come!!"

NDAD was honored to be a sponsor of a successful benefit on Kyle's behalf in late January at the Grand Forks County Office Building. A fund in Kyle's name remains open to donations for Kyle, with all proceeds going to offsetting Kyle's medical and general living expenses. (EDITOR'S NOTE: Details are here on this page.)



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FROM LATE 2013


On Aug. 21, 2013, at about 8:30 a.m., Kyle Johnson and fellow Grand Forks Public Health Department Mosquito Control worker Jonathan Bartel were hit by a train while riding a Kubota rough terrain vehicle when crossing railroad tracks west of the city's Industrial Park. Neither knew a train was the tracks; although train whistles were blown, the young men did not hear them.

When emergency first responders arrived, both Kyle and Jonathan still were strapped in the RTV.
Both young men were rushed to Altru Hospital, where life-saving triage began immediately. Kyle experienced the worst injuries and was in critical condition. He needed emergency surgery for internal bleeding and a traumatic head injury; he also had a collapsed lung and bruised vertebrae and ribs, and the ocular socket of his right eye was broken.

Today, Kyle -- the son of Les and Deb Johnson -- is at his third medical facility since his accident -- and is eager to once again get home. He's undergoing extensive rehabilitation at the Courage Center in Golden Valley, Minn. Kyle has made significant progress since the accident, but his recovery journey could be lengthy.

Friends and neighbors of Kyle have teamed with charitable nonprofit NDAD in an effort to help offiset some of his medical, rehabilitation and related expenses during this difficult recovery period.

The effort will culminate with a special Kourage 4 Kyle Benefit, set for Sat., Jan. 25, on the sixth floor of the Grand Forks County Office Building, 151 S. Fourth St., downtown Grand Forks. The event will include a silent auction, bake sale and a baked potato, chili and topping bar. A free-will offering is suggested.

All proceeds -- 100 percent -- raised in the Kyle Johnson fundraising efforts will be used for that purpose. That includes donations made online using the "Give Online" button that accompanies this Kyle Johnson article and photo. You can use a credit card or PayPal to donate.

Or, you're invited to mail a donation to help Kyle. Send it to the address provided below. You also can drop off a donation at the same address during NDAD's normal Grand Forks business hours of 9 a.m. to 5 p.m. weekdays.

Mail Donations For KYLE JOHNSON To:
NDAD
c/o Kyle Johnson Fundraiser
2660 S. Columbia Road
Grand Forks, ND 58201

For monetary donations by check, please make checks payable to NDAD and write "Kyle Johnson" on the check memo line.


Learn more about NDAD's free-of-charge Community Fundraiser Program by calling (800) 532-NDAD.



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LEXIE DAHLEN
Give OnlineNOTE: The benefit has been held, but the NDAD fund for Lexie Dahlen remains open for donations.)

Lexie Dahlen of Grand Forks is at the University of Minnesota Amplatz Children’s Hospital in Minneapolis with a new liver. She received the liver during a transplant operation May 13 at a Minneapolis hospital. She remains in the hospital as she tries to recover while battling complications from the transplant.

The young Grand Forks woman, a 2013 Red River High School graduate, was born with a liver damaged by a disease called biliary atresia. In 1997, when Lexie was 2, her liver was replaced with a portion of her mom’s liver.

For 16 years, Lexie had done well -- even while requiring daily medications, monthly blood draws, numerous doctor visits and many minor surgeries. But problems returned in the fall of 2012. Following an emergency medical airlift to a Minneapolis hospital to deal with gastrointestinal bleeding, plus receiving multiple blood transfusions and more than 10 surgeries, Lexie was placed on a liver transplant list in late 2012.

On March 27, 2014, Lexie was flown by air ambulance to Children's Hospital because of her failing liver, mental confusion and kidney failure.

Two fundraisers are planned shortly. The first -- Sat., June 7 -- will be held at the Elk Horn Campground and Resort on South Twin Lake near Mahnomen, Minn., a favorite seasonal camping spot for the Dahlen family for 18 years. This benefit includes a pancake breakfast and bake sale from 8 to 10:30 a.m., followed by a beanbag tournament at 11 a.m. A free-will offering is requested.

The second, larger fundraiser is set for Thurs., June 12, at the East Grand Forks (Minn.) Eagles Club (see the benefit flier that accompanies this article).

Donations to help Lexie and the Dahlen family with medical and general expenses can be made to charitable nonprofit NDAD, already the sponsor of several events to raise money for Lexie and the custodian of a special fund for her through NDAD’s free Community Fundraisers Program. All proceeds donated for her – 100 percent – will be used to help her.

All you need is a credit card or PayPal to give online to help Lexie. Click the "Give Online" button that appears on this page with Lexie's photo and this article.

Or, you may mail a donation to: NDAD, c/o Lexie Dahlen Fundraiser, 2660 S. Columbia Road, Grand Forks, ND 58201. Please make checks payable to NDAD and be sure to write “Lexie Dahlen” on your check’s memo line.

Thank you.

Mail Donations For LEXIE DAHLEN To:
NDAD
c/o Lexie Dahlen Fundraiser
2660 S. Columbia Road
Grand Forks, ND 58201

Because of changes in the banking industry, all checks for this fundraiser must be made payable to NDAD. All of the proceeds raised -- 100 percent -- will benefit Lexie Dahlen and her family. Thank you for supporting the Dahlens.

Follow the fundraising efforts for Lexie and other community fundraisers -- plus other NDAD programs and news, information, issues and commentary about disabilities and health challenges -- on NDAD's Facebook page and on NDAD's Areavoices.com blog.

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LYNNETTE CREUTZ
Give Online(NOTE: The benefit for Lynnette Creutz has been held, but fundraising continues in order to get her a new van wheelchair lift and accessories).

A fundraiser is set for Thursday, June 19, at the East Grand Forks (Minn.) Eagles club to help Lynnette (Mortrud) Creutz, 60, a Grand Forks native and East Grand Forks (Minn.) resident.

Lynnette has endured a lifetime of life-altering health challenges. She lives with lipo-lymphedema, a genetic condition which causes painful leg enlargement and other body swelling; and spondylolisthesis, a degenerative displacement of spinal vertebra. She also has fibromyalgia, COPD, asthma and a heart mitral valve condition.

Despite this, Lynnette refuses to let her disabling circumstances turn her into a shut-in. A retired special education school teacher, Lynnette uses a power chair for routine mobility and an aging van, lift and conversion to get to and from her part-time job at Target in Grand Forks and to reach other destinations, including medical appointments and volunteer work at several community locations.

Now, her much-used van and its conversion equipment are in need of replacement. She''s secured portion of the money to cover replacement and updating costs, but she''s well short of the rest needed, and she lacks the financial resources to cover it.

All proceeds from the benefit for Lynnette June 19 will be used to help for a new wheelchair lift and accessories for a van. The benefit includes a spaghetti dinner and a silent auction.

The East Grand Forks Eagles Club is at 227 10th St. N.W., a half-block west of Burger King.

The fundraiser is sponsored by NDAD through its free-of-charge Community Fundraisers Program. NDAD, a 501(c)3 charitable nonprofit, is serving as fund custodian to ensure that any money raised is used for the purpose intended.

Anyone who would like to contribute silent auction items for this benefit should call benefit chair Sally Arnold at (701) 330-4614, or email her at the.arnolds357@gmail.com.

You may donate online to help Lynnette by clicking the "Give Online" button that accompanies this article and using a credit card or PayPal account. Or, you may mail a donation to: NDAD, c/o Lynnette Creutz Fundraiser, 2660 S. Columbia Road, Grand Forks, ND 58201. Please make your check payable to NDAD and be sure to write "Lynnette Creutz" on your check''s memo line.
Mail Donations For LYNNETTE CREUTZ To:
NDAD
c/o Lynnette Creutz Fundraiser
2660 S. Columbia Road
Grand Forks, ND 58201

All checks for this fundraiser should be made payable to NDAD, and please write "Lynnette Creutz" on your check's memo line. All of the proceeds raised -- 100 percent -- will be used for a new wheelchair lift and assessories for Lynnette's van.

Follow the fundraising efforts for Lynnette and other community fundraisers -- plus other NDAD programs and news, information, issues and commentary about disabilities and health challenges -- on NDAD's Facebook page and on NDAD's Areavoices.com blog.

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TERRY HARMON
Give OnlineNOTE: The benefit for Terry Harmon has been held, but the NDAD fund to help Terry remains open for donations.)
READ NDAD's recent Areavoices.com article about Terry Harmon HERE

Terry Harmon, Grand Forks, has been undergoing treatment for colorectal cancer and a serious infection that led to an extended hospital stay.

After all of this, he will undergo his fourth surgery to correct problems resulting from the previous one.

This has led to mounting hospital and other medical bills.

Friends, family members and co-workers are coming together to show their support with a benefit set for Sat., April 19, from 3 to 8 p.m. at the East Grand Forks (Minn.) Eagles Club. A free-will donation is requested. The benefit will include a baked potato bar, silent auction and music provided by SM Productions & Photography.

For more information, or to donate items for the silent auction, please contact Meaghann at (218) 779-7698 or Larry at (218) 791-0149.

Forum Communications wrote an article about Terry Harmon that was published in some of its publications. You can read it HERE.

The Altru Health Foundation's Legacy newsletter for March featured Terry Harmon in an article about colorectal screening. You can read it HERE.
Mail Donations For TERRY HARMON To:
NDAD
c/o Terry Harmon Fundraiser
2660 S. Columbia Road
Grand Forks ND 58201

Please make checks payable to NDAD and be sure to write "Terry Harmon" on your check''s memo line.

You also may donate online using your credit card or PayPal account. Click the "Give Online" graphic that accompanies this section about Terry Harmon.
WILLOW MARKA
Give Online(NOTE: This fundraiser was held on Sept. 30, but donations still are being collected. Go to the bottom of the article for more information.)

Willow Marka turns 1 this month, but the Grand Forks baby has been through plenty of health challenges – and she faces more.

She was born with a life-threatening congenital heart condition – hypoplastic left heart syndrome (HLHS) -- that resulted in the left ventricle of her tiny heart severely underdeveloped.

Willow needed open-heart surgery right away, and had to overcome a collapsed lung, pneumonia and sepsis following surgery. A second open-heart surgery in February went wonderfully, said her mom, Cassie (Knoop) Marka.

That said, little Willow faces at least one more open-heart surgery, though, with a likely heart transplant in her future.

An NDAD-sponsored fundraiser last fall in East Grand Forks, Minn., helped the Markas deal with the medical and general expenses that occurred in the months leading to, during and after Willow’s birth and her first two surgeries.

Now, the Team Willow fundraising resumes as her parents, Bill and Cassie, are attempting to bring their daughter to the best surgeons in the country for a third surgery in hopes of putting off that heart transplant for as long as possible.

You can help support Willow in her continuing fight against HLHS by attending a special Green Mill For Good event specifically at Grand Forks’ Green Mill restaurant and bar on Tues., Sept. 30. It’s at 1930 S. Columbia Road.

From open to close that day, for dine-in and take-out orders, 20 percent of your Green Mill bill will go to support Team Willow and Willow’s fight for life. You need to present a special voucher in order for the donation to take effect.

Get the voucher to print HERE. Be sure to present it at the time of payment to Green Mill in Grand Forks on Sept. 30, or show the image of the voucher on your cellular phone when you use it that day at that restaurant.

The public is invited to attend this event. If you’re unable, your assistance in others ways is welcome:

• Go online at http://www.NDAD.org/fundraisers.asp and click the “Give Online” button that accompanies this article about Willow Marka. Use your credit card or PayPal to donate to the Willow Marka Fund.

• Mail your donation to: NDAD, c/o Willow Marka Fundraiser, 2660 S. Columbia Road, Grand Forks, ND 58201. Please make checks payable to: NDAD and be sure to write “Willow Marka” on the memo line of your check.
Mail Donations For WILLOW MARKA
NDAD
c/o Willow Marka Fundraiser
2660 S. Columbia Road
Grand Forks, ND 58201

Please make checks payable to NDAD and be sure to write "Willow Markal" on your check's memo line.

Go to NDAD's Facebook page and "like" NDAD to stay up-to-date with information about the fundraising efforts for Willow Marka and the Sept. 30 fundraiser at the Green Mill in Grand Forks on her behalf. You also can learn about other fundraisers and endeavors by charitable nonprofit NDAD on that Facebook page.

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© North Dakota Association for the Disabled, Inc. 2014